Mission: To catalyze collaborative partnerships across the continuum of care. Vision: Patients, providers & caregivers as equal partners. #s4pm

World
Joined June 2009
Participatory Medicine retweeted
Great #PFCC learning @IPFCC @S4PM
1/ Grady wards Him: “I got a bone to pick with you.” Me: “Me?” Him: “You.” He pointed at me for emphasis. Him: “I’m not so sure I like how you was talking ‘bout me.” I sifted through my head to try to think of any verbal missteps. I waited to see what he’d say next.
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Participatory Medicine retweeted
who else wants an Own Your Health Data shirt? we've got a couple to give away ... 😀 #digitalhealth #designthinking #ux #healthdesign
Replying to @ePatientDave
Hey @jsonin this fellow wants an Own Your Health Data shirt :) #Cinderblocks22! #HealthData #GMDD
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Participatory Medicine retweeted
Hey #HITMC FRIENDS! I’ve checked into the Sonesta Hotel in Foxborough ahead of tomorrow’s conference. Wondering if there are any plans to get together tonight?
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Participatory Medicine retweeted
1/3 Post-CuresAct stats @ChildrensPhila - our patients can now access 🏥📲 📝 95% of all clinical notes 💉 95% of all lab/rad results 😷 100% of problem list entries (except legally protected) ...while protecting teen & mom's privacy @myopennotes @S4PM
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Participatory Medicine retweeted
Replying to @beth_morton
You should join @S4PM Participatorymedicine.org Patient Advocates & medical professionals have been working the accuracy of written medical records, EHR, & EMR for yrs. No one can change a med record except the provider that wrote them. I worked for a payer & some will correct #1
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Participatory Medicine retweeted
I’m very proud to be a co-author on this project being presented today at @carrinc. It's a great example of how researchers can partner with patients/caregivers who have lived experience! It was also shared at @ACRheum by our lead author Dr. Leigh Anna Stubbs. #CARRA2022 @S4PM
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Participatory Medicine retweeted
Happening live at the #NBCCSummit now: @fumikochino, Lee Newcomer, Kent Rogers of @EQRxInc, @NBethEmery, and Ivis Febus-Sampayo are discussing how to improve access to quality, evidence-based cancer care. #BeBold #StopBreastCancer
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Participatory Medicine retweeted
This is a really fantastic piece about #NarrativeMedicine and how it can open the door for true #ParticipatoryMedicine. (The piece also includes part of a poem by one of my favorite poets.❤️)
New on the e-Patients Blog of the Society for Participatory Medicine: "Tell Me Your Story: How Narrative Medicine Fosters Trust," by narrative health activist Derek McCracken participatorymedicine.org/ep… HT @intellusww @s4pm #narrativemedicine #healthequity
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Participatory Medicine retweeted
#ACP2022 great initial data from the 3rd conversation project where patients & clinicians sit down together to hear each other’s stories @gabrieldane @CoherenceMed @S4PM @DiffCollab @petewendel @HealthHats
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Participatory Medicine retweeted
It wouldn't be expensive, either. But it does require a change in mindset, an understanding that human care is better care & most likely pays for itself in terms of less care needed overall, fewer misunderstandings & fewer lawsuits (for starters). Time for a compassion revolution
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Participatory Medicine retweeted
“The experts in the room are #patients. And the experts in the community are its trusted leaders.” Powerful words that speak to the need to communicate and build relationships to ensure diversity, equity, and inclusion in #clinicaltrials #PatientsasPartners2022
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Participatory Medicine retweeted
Just got off the prep call for my Pediatric Grand Rounds for @CincyKids @CincyKidsCME May 3! It'll be open to the public, live & recorded. Their trailblazing projects @C3NProject and @ImproveCareNow show patient autonomy & empowerment improving outcomes. cc @michaelseid11
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Participatory Medicine retweeted
@DrDannySands helped save my life by encouraging me to participate in my care. With a big birthday coming up, fittingly he's doing a fundraiser for @S4PM. If you're on FB, will you contribute? facebook.com/donate/31671954… If not on FB, contribute directly: participatorymedicine.org/do…
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Participatory Medicine retweeted
NEW: "Simple Measures to Put Caring Back in Health Care," an excerpt from Theresa Brown's latest book, "Healing: When a Nurse Becomes a Patient," on the e-Patients Blog of the Society for Participatory Medicine participatorymedicine.org/ep… @TheresaBrown #nursetwitter #bcsm #nursing
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